Bring attention to Progressive Supranuclear Palsy (PSP)
As a family, we have decided to create this page to raise money for PSP research and advocacy, most importantly raise awareness.
We want to see better patient/carer journeys, including timely diagnosis, and most importantly, finding a cure for this little known disease.
With only 1,300 known cases in Australia and no high profile advocates to support the cause, attracting funding for research or any sort of registry to recruit participants will not be possible.
Please support much-needed PSP research and support for the Movement Disorder Nurses who helped people like ourselves navigate the system. They receive no goverment funding.
Thank you in advance for your generosity and bragging via Social Media is highly encouraged as you never know who might need to know about PSP.
My Updates
THANK YOU!
Wednesday 6th Aug
About Progressive Supranuclear Palsy
Tuesday 29th Jul
Zoey's Extraordinary Playlist - is a musical ‘dramedy’ streaming in Australia on Stan features a main character with PSP. The show is about a young woman whose father suffers from PSP and reconnect through music.
Thank you to my Sponsors
$211
Sarah & Esty
$106.12
Hansni Bhagani
This is a wonderful thing to do in your mother's memory. Sending you lots of love.
$100
Tammy Ando
$54.12
Marg And Phil Funnell
Dear Queeny, hope this can help towards this cause. You are a great champion for this.
$54.12
Giti And Abtin X
In memory of your mother. Peace and Love.
$54.12
Sarah And Frank Lin
Sorry for your loss but thank you for educating us on the rare condition. Please keep up the work!
$54.12
Michelle And David Ngo
So sorry for your loss, this is a beautiful legacy for your mum. Take care, Michelle and David
$54.12
Annie Hsu
I know how hard it is to lose a mum. Sending love to you and the family.
$50
Sandy Chan
$50
Lynley Hurst
Sending my love and support. This is a wonderful way to honour your mother and help other families xx
$50
Fiona Mr
My sympathy and prayers to you and your family Queeny.
$50
Monique
$50
Joanna Yeung
Sorry to hear Queeny. Thank you for educating and spreading the important message
$50
Judy And James
$43.60
Nicola G
I know how awful this disease and others like it are for people and their families. My thoughts are with you during this time, Queeny.
$30
Juliana Sham
$27.81
Christine Newman
Dear Queeny, my thoughts are with you and your family at this very sad time. I know how special your Mum was to you from our conversations. Her love will always be with you. Christine Newman
$27.81
Nicole Wiles
What an amazing thing to do Queeny in memory of your Mum. Completely agree so much more needs to be done to raise awareness x
$27.81
Paul Klarenaar
Thinking of you Queeny ♥️
$27.81
Loviner
My sincere condolences to you Queeny and the family. A beautiful tribute to your mum in raising funds and promoting awareness of PSP.
$22.58
Crystal Hillery
Sending love to you and your family.
$22.58
Melita
I’m thinking of you Queeny and am sorry for your loss.
$11.65
Anonymous
Our thoughts are with you and the family at this time.
We are so sorry for your loss. Thinking of you and your family and sending all our love and support during this incredibly hard time. Sarah and Esty x